Addie has an upper respiratory infection (or as I call it: “daycare cooties”) and is just miserable. She developed a high fever last night, which prompted me to call the nurse. I wasn’t overly concerned about her symptoms, but more worried about her fever climbing and possibly causing a seizure. The nurse told me that we should go on and take her to Children’s. She also told me that regardless of Addie’s symptoms, any time Addie ran a high fever they would have us take her to Children’s just because of her diagnoses. This visit to the E. R. really wasn’t that bad in the whole scheme of things. The most frustrating part of the night was having to spell and explain to each doctor what Addie’s (secondary) diagnosis was. I am just amazed that pediatric specialists have never heard of her condition.
I have been struggling trying to decide if I felt comfortable sharing Addie’s diagnoses with people who asked. More than anything I am very afraid of the stigma that people will immediately associate with it. I ran in to a co-worker on Friday who asked about the diagnoses and I decided to go on and give details but asked them not to say anything to other people about it. When I got home I told Chris about the conversation and he made me realize that there are so many of you who are praying for Addie and who genuinely care about us that you would only use the information given to you to pray harder and to make the prayers more specific. It is virtually impossible for me to talk to anyone right now about Addie, but I am so thankful for you all. Everyone has been so kind to us and each and every prayer is appreciated and needed.
