Saturday, I received a written report from Addie's geneticists summarizing the dismissal of her secondary diagnosis. Along with that, I was told a few things that I should expect for her:
"she will have relatively normal development the first year, but then will develop moderate handicaps;
she will walk between 18-21 months and
she will develop some language"
Well, I guess I can quit worrying about the future, it was just laid out for me... I cried when I read the letter and then by Sunday became angry. I can't believe that they would try to pinpoint Addie's development based on an MRI and immediately classify her. To top that off, one of the geneticists emailed me and asked if I would bring Addie back in two to three months so that we can "talk about it"...
I want to refer back to this post over time just to remind myself how we proved them all wrong. She WILL surpass all odds.
How a diagnosis of Microcephaly changed the lives of so many people.
Celebrating Nine Years!
My sweet girl had a very busy day! We spent the day by having lunch at one of Addie's favorite restaurants, then I took her s...
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My niece's were so excited to go see the Abby Lee Dance Company ( Dance Moms )! They were just as nutty over this as Julien was over ...
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Addie had her fourth hearing evaluation today. We saw the same audiologist that Addie saw on her first visit when she was nine days old! T...
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I branched out from the usual and ordered Addie a new style hair bow. I only ordered seven this go around and all were the standard except ...