Addie had her appointment at The Bell Center yesterday and they are working with her on taking a bottle.
Due to an extremely hectic day and a daycare melt down (very long story) they had to try Addie on formula since I wasn't able to bring any milk with me.
She did great although it was very frustrating for her.
On the ride home Addie got VERY sick and vomited everywhere.
I thought it was just from the formula and her little tummy not being use to it, so I got her home, cleaned up and put down for a nap.
As the evening progressed Addie was not waking from her nap.
Chris and I kept trying to wake her and when she would open her eyes, she wasn't responding like she normally would and she also wasn't crying in response to her needs.
Addie wasn't attempting to nurse and had only one wet diaper so my initial thought was that she was dehydrated.
I called the doctor, which led us to Children's Hospital E.R.
Poor Addie was put through a multitude of tests; blood work, urine test, x-ray and a lumbar puncture (spinal tap) and finally started on an I.V. to get her fluids back up.
All tests came back negative, so the doctors believe that one of two things happened.
Either Addie had a seizure, which caused the vomiting which led to her lethargy, or she simply had a bad reaction to the formula (soy based so it was a little surprising) and couldn't recover from the lose of fluids.
We spent ALL night in the E.R. and after Addie's second round of I.V. fluids and no answers we were released from the E.R.
We immediately made our way to Addie's 9:00 appointment with the new neurologist, Dr. Ness. She is absolutely wonderful!
She felt like since there wasn't proof that Addie had a seizure she wasn't going to worry at this point (great news!).
However, she did tell us she feels like it is a matter of time before Addie does start having seizures.
With Addie having two troubling diagnosis, the doctor feels this is inevitable.
Dr. Ness told us that Addie makes great eye contact and is very strong; we love to hear good news!
Dr. Ness also said that with her receiving therapy so early and with us working with her at home, that this does increase her chances of having a better prognosis.
She was very honest and let us know that there is definitely the damage to Addie's brain but was encouraging and told us only time would tell what to expect.
We simply have to "Wait and See".
